ABOUT ME

I am a software professional, living and working in the San Francisco Bay Area. I grew up in India and moved to the United States to study at The Ohio State University on a graduate fellowship. After completing my masters in Computer Science, I moved to California for work, and have worked at Synopsys, Qualcomm, and Google (present). I live with my wife and daughter.

In 2015, I was diagnosed with a rare disease called GNE Myopathy. GNEM is a slowly progressive muscle disease that typically manifests itself in adults in their 20s through 40s, and results in a debilitating loss of muscle mass and function over time, including a complete loss of independence.

The Neuromuscular Disease Foundation (NDF), a nonprofit organization based in Los Angeles, is working on finding a cure for this rare disease. In May 2022, NDF did a patient profile on me, titled "GNE Myopathy -- Will Today's Patients See a Treatment That Will End GNEM in Our Lifetime?" This article was also picked up by BioSpace and patientworthy. Encouraged by the outpouring of support after that publication, I created this blog to expand my patient advocacy for GNEM and drive support for finding a cure.

Thanks for your support. Be well.

You can follow me on Mastodon at @mghiware@sfba.social.